We have wanted answers for a long time.
For her bouts of weakness, her extreme fatigue, her ease to cry and lack of balance.
She has been poked and prodded and tested.
And then things will get better for a bit. We will see smiles and energy and strength emerge and give her a break from doctors.
Then it all happens again and we begin the appointments, the searches, the tests
and arrive at where we are today.
With the right tests,
If only I wanted the answers they are bringing.
My little McKenna is on the road to being diagnosed with a mitochondrial disorder, a rare, genetic disorder that doctors now think is what took her sister from our family and is also related to Ashlyn’s autism.
I have debated on blogging about this until things are more certain but it is where we are right now.
The last few days have been a fog of reading and researching and piecing together information and truthfully, I know the doctors are right. That tug that they may be on the wrong track? It’s not here this time. That knowing that you are reading about your own child? I have it.
My mind is caught on words like degenerative and inherited from the mother and concerning results and I find myself doing what I have told so many struggling moms to concentrate on, just putting one foot in front of the other.
It is all I can manage at the moment.
I have spent the last four years trying to perfect the art of not burying myself in the past.
I am not sure how to ignore what may be our future as well.
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